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A Bundle of Myrrh

"My beloved is unto me as a bundle of myrrh." Song of Solomon 1:13

Archive for the ‘Rose’ Category

Rose 18 months old

Friday, March 31st, 2023

March 29: Rose is 18 months old now, what a year and a half it has been! The last several months she has made so many leaps in her physical abilities. She finally started rolling from her back which gives her some mobility on the floor. She can scoot around on her bottom, lay down and then get back into a sitting position now as well. All of this changes so much for what she can explore. She also working hard on standing up with her AFOs on, she stands stationary in a “stander” to build bone strength and she’s getting slightly better at moving a bit in her baby wheelchair. She’s a happy girl, so strong. We’re so thankful for her!

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Beauty and the Baguette

Wednesday, August 31st, 2022

July 16: “If thou tastest a crust of bread, thou tastest all the stars and all the heavens.” Rose…ok Robert Browning said that but Rose does not disagree. We quickly learned how to make Rose happy, give the girl a baguette!

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The Trip to France

Monday, August 8th, 2022

July 10: In March Phil was approached with an opportunity to attend John Warwick Montgomery’s International Academy of Apologetics, Evangelism & Human Rights that’s held in July in Strasbourg. With tuition and airfare paid for it seemed like a gift too great to pass up.

Then in May things changed with Rosie and leaving her in the care of someone else was not going to work. So it was either cancel the trip or take Rose. After a lot of thought and checking with her doctors we decided to take Rose. We didn’t know how it would go but we wanted to try to make the best of it and enjoy this new kind of adventure. We also prayed a lot that she’d stay healthy.

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Eight Months Old

Wednesday, July 6th, 2022

May 29: Rosie turns eight months old! This month she sits all by herself for a minute, gets fitted for her first pair of Ankle Foot Orthotics and starts doing more “leg work” for PT. Unfortunately this month she’s also had to fight off two UTIs after we had to begin using catheters to ensure her bladder is fully emptied. We do this several times a day from now on. With a bladder regimen going she also now has a bowel regimen. So much fun for her. Oh and she still hasn’t gotten any teeth!

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