Image 01

A Bundle of Myrrh

"My beloved is unto me as a bundle of myrrh." Song of Solomon 1:13

Archive for the ‘Spina Bifida’ Category

Rose Updates

Monday, November 24th, 2025

July 31: Today Rose said farewell to her physical therapy home team. Shaylnn has been with us since Rose was a month old! And Rosie took right to Margot last year when her other therapist moved, they were instant friends. Being set up with a team of people who helped us navigate all the therapy options and give us knowledge on what to do in our home to help Rose’s mobility grow stronger has been invaluable. We will miss seeing them and having their assistance and encouragement every month. They’ve been such a great blessing to Rose and to our family. Now we’re off to find out what will be the next step in her changing mobility needs.

Rosie Update

Sunday, April 27th, 2025

February: Rose continues to impress us with her abilities! In February we decided it was time to get her walking. Her therapist, Ms. Margot, brought over a gate trainer for her to try. She’s taken to it easily, we’re so proud of her.

(more…)

Rose 18 months old

Friday, March 31st, 2023

March 29: Rose is 18 months old now, what a year and a half it has been! The last several months she has made so many leaps in her physical abilities. She finally started rolling from her back which gives her some mobility on the floor. She can scoot around on her bottom, lay down and then get back into a sitting position now as well. All of this changes so much for what she can explore. She also working hard on standing up with her AFOs on, she stands stationary in a “stander” to build bone strength and she’s getting slightly better at moving a bit in her baby wheelchair. She’s a happy girl, so strong. We’re so thankful for her!

(more…)

Eight Months Old

Wednesday, July 6th, 2022

May 29: Rosie turns eight months old! This month she sits all by herself for a minute, gets fitted for her first pair of Ankle Foot Orthotics and starts doing more “leg work” for PT. Unfortunately this month she’s also had to fight off two UTIs after we had to begin using catheters to ensure her bladder is fully emptied. We do this several times a day from now on. With a bladder regimen going she also now has a bowel regimen. So much fun for her. Oh and she still hasn’t gotten any teeth!

(more…)