"My beloved is unto me as a bundle of myrrh." Song of Solomon 1:13
Sunday, October 3rd, 2021
I was discharged today. Such a bittersweet day. I know I’ll be back in the morning to see my baby and I know she’s where she needs to be, in good hands but….I’m sure I don’t even have to say how hard that is. I had a huge welcome home from all my other babies this afternoon which did my heart good.
Rose continues to be content and right where her doctors want her to be as recovery goes and I’m finally feeling almost sort of normal for the first time. Both of us just need to keep resting up!
Friday, October 1st, 2021
Update time. We’re thankful to report that Rose is doing wonderfully, really everything is going as well as it can be. She is resting soundly and eating…from a bottle which is a huge deal! As of now there should be no reason for an NG tube if she continues to do well with that. Also her IV could come out today or tomorrow. She has not needed oxygen today since she is breathing so well on her own. Aubri was able to hold her for about an hour today much sooner than expected.
Another ultrasound was done on her head this afternoon to measure the ventricles in her brain. This is something that has to be monitored now that her back is closed and spinal fluid has nowhere to go. We do not have the results from that yet but hope to know a little more later today once her neurosurgeon sees them and we meet with her. It could be a few more days before there’s a plan on how to redirect the fluid if need be.
Thursday, September 30th, 2021
Rose is back in the NICU for recovery after surgery to close her back. She is strong, vigorous, and breathing well on her own. They said the surgery went really well and that she is ready to start feeding. We are thankful Christ is taking care of all of us.
Saturday, September 25th, 2021
September 25: “For My thoughts are not your thoughts, Nor are your ways My ways,” declares the Lord.”
It seems nothing has gone as we have planned every step of the way during this pregnancy. From the diagnosis, to the exclusion from the Fetal Surgery, to the original date we had set for the birth of our baby, nothing has worked out the way we thought it would. But as we know God’s ways and plans are for our good, our times are in His hands not in ours and though so much has not gone as we expected we give God thanks for His constant provision.
For months our hope and ‘the plan” we had arranged with our doctors was to get Rose to 39 weeks and do a normal delivery. However, after a frustrating week of uncertainty, conversations with our doctors, much thought and prayer we have decided that a C-Section at 37 weeks is the best choice for delivering our baby girl.
So our plan as of today….insert laughter here….is to have a baby this Wednesday, September 29th!
I’m relieved to have an end in sight and honestly also scared about all that begins now. It looks like the surgery to close her back and the shunt placement will be done the following day on the 30th.
Thank you all for the prayers you have offered during this pregnancy and for your ongoing prayers as Rose enters the World and continues the path God has given her. You are all such a blessing to our family.
“So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.”
