A Bundle of Myrrh

November 3: Rose’s journey of a thousand casts began today. Each week for the next 8 weeks she’ll get a new set of plaster casts as her clubbed feet are gradually adjusted to a straightened position. This process of “serial casting” aka the Ponseti Method is pretty typical in babies with the myelomeningocele (Spina Bifida) Rose has.

Once again I’m very grateful to the Mamas who have shared aspects of their children’s lives on social media. Seeing other babies go through this was so helpful in preparing me for this part of Rose’s life. I was able to expect it, process it and have it seem as normal as it can be in our new SB world. So far she’s done well having these on her little legs.

October 25: Today is World Spina Bifida and Hydrocephalus Day. We’ve only been on this road for a short time but we’ve already seen so much of God’s goodness and provision. What a gift to have so many people praying for our sweet Rose, encouraging us and being willing to help in any way they can.

It’s also been a blessing to get acquainted with other Mamas raising little fighters, there’s so much support in that. I’m so grateful they are sharing their lives with others, I really needed that in the early months after Rose’s diagnosis. There is much to be thankful for. 

October 18: One more peek at what we’re leaving behind.

We are finally home and very thankful we can all be together at last. Our kids had not seen Rose in person after 19 days in the hospital.