A Bundle of Myrrh

October 18: One more peek at what we’re leaving behind.

We are finally home and very thankful we can all be together at last. Our kids had not seen Rose in person after 19 days in the hospital.

October 17: So we didn’t bust out of this place over the weekend. All we’re doing now is hanging out and drinking really bad coffee.

We’re looking at the possibility of going home tomorrow but…I know how this game works now. She’s cleared to go by everyone but the final hook we’re hung up on is Rose’s bladder function and how often she needs cathing. Every 12 hours seems to be too long so we’re going back to 8 hour intervals. The urologist will look at her volumes and decide what plan works best and if we can leave with that plan Monday. Ugh a lug. Praying for patience!

October 15: Rosie update. We’re still in the NICU. Today Rose got a real bath. I think she might have enjoyed it had she not been starving at the time poor thing. 😅

Yesterday we were taught how to use a catheter to empty her bladder. We’re not sure if this is something we’ll have to continue doing long-term or if it’s temporary. Until evaluation or better testing can be done by a urologist we won’t have a clear answer. We hope to meet with that doctor next week.