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A Bundle of Myrrh

"My beloved is unto me as a bundle of myrrh." Song of Solomon 1:13

Archive for the ‘Spina Bifida’ Category

Casts – Holiday

Monday, December 20th, 2021

Rose will have this set of casts for a few weeks through December so we thought a Holiday Roses theme would be lovely.

Rose Update

Monday, December 20th, 2021

December 2: Another procedure for little Rose today. Just an outpatient snip of her achilles tendons to lengthen them so she can eventually use her feet to stand upright. She really enjoyed having her casts off for a while, she was super chatty before they took her back.

She’ll have a new set of casts put on after the surgery and keep those for 3 weeks before she moves into wearing little boots. Considering all she’s been through already this is a very minor procedure, still it’s one more thing.

Cast Art -Autumn

Monday, December 13th, 2021

November 21: A new set of casts for Rose, a new design. This week, Autumn Florals by Clara.

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Physical therapy

Monday, December 13th, 2021

November 20: All dolled up for PT. Thursday was Rose’s first official therapy day with Ms. Drew, our physical therapist. What does PT with a 7 week old look like? Mostly conversations and troubleshooting with the therapist. Just little things for now a lot of what we would do with any newborn. We got some good tips in positioning Rose for strengthening her neck and trunk. She’s been favoring looking to her left side so she showed us ways to keep her from getting too stiff in that position. Really we’re all getting to know each other at this point and creating a relationship between Rose and Ms. Drew that I hope will last a few years.

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