Image 01

A Bundle of Myrrh

"My beloved is unto me as a bundle of myrrh." Song of Solomon 1:13

Archive for the ‘Spina Bifida’ Category

Queen Rose

Wednesday, April 20th, 2022

April 9: Floor time with Rose. This week our physical therapist brought a new type of seat to try so Rose can sit up better to play and keep learning to control her upper body better. She’s getting really good at “sitting.” I mean all hail Queen Rose. Month six is proving to be a big one for her!

Love At First Bite

Wednesday, April 20th, 2022

April 7: Doing Rose a solid! Finally introducing some food to this hungry girl and she loves it. More importantly she swallows it. I’ve been concerned she would have a strong gag reflex or trouble swallowing as I have come across other parents of children with Spina Bifida describe, but she seems to be doing very well with this first meal at least. 

The Rose Show

Tuesday, April 12th, 2022

March 23: Yay Rose! She only has to wear her Ponseti boots for 16 hours a day now!

Freedom!

The Rose Show

Friday, March 11th, 2022

March 3: Rose is working so hard to roll over. Her physical therapist is very happy with her progress. We continue to work on strengthening her upper body and give her opportunities to roll but every other milestone she’s accomplishing right on track. She’s such a happy and chatty girl!

(more…)